Sunday, December 23, 2012
Baby steps!
They just did the manual bag breathing test
the doctors words were "It's not terrible, it is not as bad as the other
doctor had described them" and then he turned down some settings(in a
good way) I will count that as a win! Now, we watch the numbers to make
sure he tolerates these lower settings. So far, so good. With the
lungs & their healing, there won't be anything drastic day to day,
but in a few weeks we should be in a
much better place & re-evaluting ECMO stuff. They always tell me
this is going to be a long road, no specifics. More answers &
better guesses to when we go home will come with time. Right now, the
"Ballpark" guess & only a guess is February/March-ish between ECMO
& therapy afterwards. When he gets done with the ECMO he will be
basically like a newborn again, since he hasn't used his muscles in such
a long time. There will be lots of physical therapy. They say kids are
really resilient & bounce back well. He is very tough & feisty
too. It really is a good thing. So much can change from day to day it's
really hard to do a ballpark guess. Thank you for the prayers! Every
prayer counts ♥
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