Friday, August 24, 2012
Thursday, August 23, 2012
Info on the next phase of treatment.
So, I thought this "Interim Maintenance" phase was supposed to be the hardest on him but I was corrected today. Once we finish this phase we move on to "Delayed Intensification" for 57 days, and then its "Maintenance" phase. I was told today that "delayed intensification" is the one final blast to the cancer so it is considered the hardest phase on the kids from what his doctor said. I wasn't excited to hear this, but I guess its better to know what he will be up against. She said he is responding extremely well and he may just surprise us all in the next phase too! :) I like that!!
All settled in!
Cameron's spinal tap went really well. He
woke up nicely from it, had some lunch and is all settled in for the
next round! On the drive up here I saw the Dornbecher's "Panda Team"
ambulance flying down the freeway in the opposite direction. It made my
heart beat faster and a little sick to my stomach to think another
child needs it. I can't believe that at one time, they were zooming
down the freeway for our little Cameron. We are just so lucky it was
caught so quickly. Thank you again for all of your love, prayers &
support!
Wednesday, August 22, 2012
Yayyy! We passed his blood test!!
Yayyy! He passed his blood test this morning
so we are off to Dornbechers tomorrow morning! His ANC# (resistance to
infection) was 1200!! It had to be 750 or higher. He will have only 1
more mandatory admission for chemo after this! Whaa hooo!
Tuesday, August 21, 2012
He is doing well!
Cameron & his Joy Jar from the Jessie Rees foundation!
Just the boys!
Is that dust or Angels all around him? Hmmmm :) I think its his Angels :)
Cameron is still doing really well. There is not as much nausea this time around (past the time during his really hard chemo in the hospital) or we are managing it really well. He takes a daily chemo pill (Mercaptopurine or 6-MP) Friday through Monday every week. We also take the daily Morphine, Methadone, Zofran & Gabapentin several times throughout the day. We had a fun time at a wedding this weekend and a nice night at our friends BBQ. He is just one of the kids. He is still wanting mom quite a bit but at least he will play with the kids. The new plan from the pain team seems to be working well with his painful knees. It is amazing how much fuzz on his head he still has!!! This chemo was supposed to give him mouth sores and the rest of his hair to be gone. No sores and he still has fuzz, eyelashes & eyebrows!! Dad is going to take the twins to the beach for some fun with the grandparents. The twins do much better with all of this, since we figured out to distract them with adventures! Thank you Aunt Kiss, Uncle Brad, Kelsey, Kayleen, Grandma, Grandpa & Roberta!!!!
Just the boys!
Is that dust or Angels all around him? Hmmmm :) I think its his Angels :)
Cameron is still doing really well. There is not as much nausea this time around (past the time during his really hard chemo in the hospital) or we are managing it really well. He takes a daily chemo pill (Mercaptopurine or 6-MP) Friday through Monday every week. We also take the daily Morphine, Methadone, Zofran & Gabapentin several times throughout the day. We had a fun time at a wedding this weekend and a nice night at our friends BBQ. He is just one of the kids. He is still wanting mom quite a bit but at least he will play with the kids. The new plan from the pain team seems to be working well with his painful knees. It is amazing how much fuzz on his head he still has!!! This chemo was supposed to give him mouth sores and the rest of his hair to be gone. No sores and he still has fuzz, eyelashes & eyebrows!! Dad is going to take the twins to the beach for some fun with the grandparents. The twins do much better with all of this, since we figured out to distract them with adventures! Thank you Aunt Kiss, Uncle Brad, Kelsey, Kayleen, Grandma, Grandpa & Roberta!!!!
Thursday, August 16, 2012
The next try!
Wednesday, August 22nd is the next time we
will try with a blood test to see if Cameron passes his ANC# of 750 or
higher to have the 3rd of 4 planned admissions to the hospital for the
high dose Methotrexate & spinal tap with Methotrexate in his spine
as well. This will put us at day 29 of 64. Whew! We are almost through
this 64 day phase of treatment!! Go Cam go!! So far off & on we have had a total of 20 overnight stays in the hospital! Not bad!! :)
Tuesday, August 14, 2012
He is helping future kids!!
Cameron is curing cancer & helping future kids! He has donated some of his initial bone marrow (1 time), 1 sample of spinal fluid & now he is on a study for physical therapy for his painful knees. He is part of the cure!!
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