Friday, March 29, 2013
Happy update...remember Alec, who was super sick in the PICU with us and needed your prayers...He is back in school!!!!!! The prayers totally worked!! His mom Michelle was a big help in the PICU and a familiar face from the cancer kids floor we were on before we went to the PICU. It is such a victory to see someone make it out of that world and doing well! I love good news! Thank you for the prayers love & support! It worked!!! ♥
I had a dream last night I was kissing little Cameron & just smothering him with kisses. Thank God for dreams! I just miss him. I told the twins "That's Gods gift to us when someone we love goes to heaven. We get to dream about them & it's like they are right there." It is amazing how tears can just pour & pour from your eyes like water from the faucet. I didn't know that was possible. Thank goo...dness we have a great team of friends, family, doctors & medication to help through all of this. Time is helping too. It still sucks on so many levels, but it's helping a smidge. It's been 2 months but it feels like a million years. I just miss him so much. I wasn't done being his mommy, not by a longshot. It just feels like so much left undone. It is really just now sinking in for the twins. We are so lucky to have great nurses, friends & family doing fun special things for the twins to keep them happy. Thank you everyone who have helped us out in so many, many ways. I wish I could return the favors somehow. It really takes a team to get through all of this. We are so grateful for all of the people reaching out to us. Big hugs & loves to you!!! ♥ Thank you for the prayers too ♥
Wednesday, March 20, 2013
In trying to help out little Collin who has relapsed with Leukemia (Cameron's little buddy) there is a national registry if you want to register to see if you match as a bone marrow donor for him or someone else. Collin will need a bone marrow transplant, and I know several other kids at Doernbecher's that went through the transplant process. You may just save a little ones life ♥ You can go to "bethematch.org" to check out how to get on the registry. Just an idea I had to try to help them out. :) Thank you for all of the love & prayers!! ♥
This is little Collin he was a few months ahead of Cameron in his treatment and about the same age. He is one of Cameron's little buddies up at Doernbechers. His mom Rachel is super sweet and gave me tons of tips on navigating this process. They just found out that he relapsed with Leukemia & has to start the treatment all over again plus a bone marrow transplant. This is a tough road for them. Please send as many prayers as you can, they need them. Thank you for the prayers & cheering on one of Cameron's little buddies. This is him making new buddies!!!
Wednesday, March 13, 2013
Sorry I haven't posted in a while. We miss him so much. I keep waiting for it to get easier. People are so sweet in the kind things they do for our family. It is amazing the random acts that we will never know who did it but super helpful. I have some really great friends & family but I am still struggling to get "out & about". This has sure given us a whole new appreciation for what people go through during heartbreaking times. Cameron's leukemia diagnosis date, April 9th is coming up. I m not sure what we can do to honor him on that day. Maybe we will make a trip to Doernbechers and do something for the kids & nurses. I just miss him so much. The twins are holding up. Every day we talk about Cameron and the cute things he would say and how much he would like whatever it is we are doing at the moment. I went through the swimming bag and found his diapers & swimsuit. I fell apart. It is just so not okay that he is not here anymore. The part that helps is that he is safe in heaven happy and at peace watching over all of us. I will hug & kiss him again someday, it just really sucks right now. No one gets out of this life without trials & tests of strength. He showed what true strength and smiling through the hard times is. He really is my little hero. I could learn a lot from him to get through this tough time. Thank you for all of your love, prayers & support. Big hugs & loves to you.