Thursday, June 28, 2012

Mr. Wild Man

Keylin's bicycle helmet fits Cameron's giant head! I think our little daredevil is going to spend some quality time wearing that helmet!! He has his mother's coordination, so he falls quite a bit, in combination with his medicines too. If I had my way he would be wrapped in bubble wrap and wear a football helmet. :) He is unstoppable! :)

Tuesday, June 26, 2012

Here we go again!

We get to back up to Dornbechers on Friday for Cameron to get more blood to boost his counts back into a comfortable range. The Doctors said he is borderline now so Friday he will surely need it after this week of chemo. It will be nice to have his platelets up and red blood cells too, so he won't be as pale & more sturdy to play with the twins, if he is up for it. :)
Cameron was having so much fun with Amy his chemo pal today. His appointment went well, but his ANC#(resistance to infection) went back down to 500. That means no more public places and any fever over 100.4 gets us admitted back up to Dornbechers for 3 to 4 day minimum stay. The Dr. said that they expected this and its all part of the plan but that he is doing well in spite of his ANC#. I asked about how easily he is bruising and they said his platelets & hemoglobin dropped too. All part of the deal they said. UGH! Thank goodness he won't remember any of this! The upside is that he did have fun with Amy today!!

Sunday, June 24, 2012

The fundraiser was wonderful!!!

Wow!!! The fundraiser went great!! What a great day!! The weather held out nicely too! The band was AMAZING! The food was GREAT! Thank you everyone for all of your love, prayers & support for making today such a great day!! We can't thank you enough!!

Wednesday, June 20, 2012

Catch me if you Cameron!!~~Amy Chemo Pal

Our chemo pal Amy is going to run the Portland Marathon in October. The CCA~Childrens Cancer Association that she is involved in as a chemo pal will pay her entry fee if she raises $1000 in donations for the CCA. She said she is running in Cameron's honor & all children fighting cancer, but especially in Cameron's honor!! Super sweet of her!! :) "Catch me if you Cameron" is her FB page she started for her adventure in fundraising for the CCA & her marathon. Go Amy Go!!!!

Having fun with his Chemo pal Amy!!

He is still smiling!! He loves his cheese! Big day at his clinic chemo appointment!  Thank you chemo pal Amy for making him laugh!

A day in the life of Cameron's medicines

A day in the life of Cameron's medicines with the pain & nausea in full force:
6am Zofran (nausea), Benedryl(nausea), Adivan(nausea), Methadone(pain), Gabapentin(pain) & Morphine(pain), Septra(on weekends-preventative antibiotic)
8:30am: Mercaptopurine (chemo)
10am: Adivan, Morphine
Noon: Benedryl, Gabapentin,
2pm: Zofran, Adivan, Morphine
5pm:  IV in the port Cyterabine(chemo)
6pm: Benedryl, Adivan, Methadone, Morphine, Gabapentin, Septra
10pm: Zofran, Adivan, Morphine
midnight: Benedryl
6am start it all over again :)
When the pain & nausea are less we can take much less medicines. He is a walking pharmacy! He takes it all with not too much struggle, he like to drink his water afterward :)

Monday, June 18, 2012

Much better day today!

Today as a much better day for Cameron. He still needs mom quite a bit, but he did get down off of my lap to play with the twins & dad.  Tomorrow is our long day at Dornbechers.  He is getting another round of the hard nausea chemo tomorrow.  The next 3 or 4 days will be tough for him with the nausea. It is always amazing to see how quickly he bounces back from it all with a big grin. He is such a little trooper!