Thank yous!!

It sure was a big help to have Kayleen & Kelsey here last night while Cameron & I went to the hospital. Dad was working out of town so it was super nice to have the help. My mom came today for a while too! They all took the twins out for an adventure so Cameron & I can get some rest. Thank you to everyone family & friends who have offered their help during this whole adventure, it is appreciated more than you know!! :) It is super nice to have the "Fever Watch Gang" Thank you!!!

Getting Better!!!

We are back at the ER for the antibiotics. His fever is down to 103 before tylenol then down to 100.2 after so that is big improvement. I think we may be getting to the end of this bug. Yayyyy! Whew! Go Cammy Go! :)

Trip to the ER

Midnight trip to the emergency room with 102.7 fever.  Since his ANC# hasn't dropped completely the rumor is we get antibiotics and go back home.  Whew! We dodged that one :)

Another chemo day

We went up for chemo today & he did well but still nautious on the drive up from the last chemo he had on Tuesday. He goes back again on Thursday next week. Once the nausea is under control he bounces back pretty quickly. Cameron just recently became sensitive to the saline flush when they flush his port. I will take any pointers on how to help him with the "ucky taste" of the saline flush. He even cries at the smell of the alcohol wipe they use to disinfect his tube. It's all a new thing. Just when you get things figured out there is something new :)

Doing good so far

Cameron is doing really well this morning. Yesterday was tough for him, but he bounced back by bedtime & had a great night. He is getting so good at doing his blood pressures, temp check and doctor exams. He sits still and tells the doctor where to put her stethoscope! Again he didn't even cry when the nurse "plugged in" his port for the IV tube. All of the nurses comment on how much he is gro

wing too. The chemo was supposed to slow it down, but he is growing right through it. The chemo was supposed to stop the rapidly dividing cells in the body and his slowing his growth was going to possibly be a side effect. He is really getting tall! It is amazing that on the 9th of October we will have been doing this for 6 months! It is crazy how much everything has changed. Thank you all for your prayers love & support!! We REALLY appreciate it! Thank you for being on this adventure with us :)

Doing good so far!

We go back to Doernbecher's tomorrow for another chemo.  We usually only go once a week but this week it's twice.  The chemo he gets is called Peg-asparaginase it is tricky in the sense that it can cause an allergic reaction.  Of course any med can, but this one is more common, we get to have a child's Epi-pen on hand & to take home in case he reacts.  I am sure he will do great, he has had once before but it is always a risk with it.  It just makes for a long day, it takes a while to get it from the pharmacy, then run it in over an hour, then wait another hour to see if he reacts. At least we get to go home after!!!  We go up again this Thursday for another chemo day with more of the same medicine that will lower his resistance.  So far, we are doing pretty good!!

He is doing good so far!

Cameron had a really nice weekend! We had a nice surprise at his chemo appointment, the doctors said we would have 7 to 10 days from  the day he got his chemo to see his ANC# (Resistance to infection) go down.  That was like getting the gift of time!!  We took advantage (cautiously) of our last few days of his resistance being up and enjoyed some fun outings. The steroids are slowly building up in his system so he is still our little Cameron for the most part (not the grumpy steroid kido).  We have some friends staying with us helping out & one is a registered nurse, so its super nice to have our own personal nurse to ask questions to.  We are very lucky to have such great friends!!  This week now should be fairly quiet & uneventful for Cameron, is what the doctors said, but it gives us time to refine our techniques of infection control. Here comes the war with germs! Thank you all, so much for cheering us on in this adventure!  :)