Saturday, November 30, 2013

The first family pictures without him. Heartbreaking but must be done. We were lucky to have so much wonderful help!!

We did it...the First Christmas pictures without him, his first Christmas in heaven. Thank you so much Kimberly Webster & Family, Nicole King & family for helping make this tough time easier. The King Family and our family are on the same path. It was sure nice to be surrounded with love during this tough, awkward time. Love you guys!!! ♥
We did it...the First Christmas pictures without him, his first Christmas in heaven. Thank you so much Kimberly Webster & Family, Nicole King & family for helping make this tough time easier. The King Family and our family are on the same path. It was sure nice to be surrounded with love during this tough, awkward time. Love you guys!!!

Monday, November 18, 2013

Exactly a year ago today.

Here is Cameron exactly a year ago today. My great friend "Auntie Mo-Minda" (Melinda)came for a visit and gave him a Mickey Mouse. He loved it. That smile says it all. The 2 month count down started yesterday...ugh. I was able to have lunch today with Rachel, little Collin's mom. Collin is one of Cameron's little friends from Doernbechers that is up in heaven with him too. It was nice to catch up and get some tips on how she & her family are handling this too. Dad, Cressey is working on some toy projects for the Pediatric ICU & other sick kiddos for Christmas, more to come on that Very exciting! I just checked with the PICU the other day and they are in need of "new" comfy sweatpants/t-shirt/ sweatshirts for the families fresh from the ambulance. Sometimes, when they get off of the ambulance they are covered in "something" and have nothing clean to change into until family can get there, to bring them their own clothes. That is a big way to help families during their toughest times. They need size 6 to adult. Just an idea if someone is looking for a way to help out this Christmas holiday season. Donating online to "Sparrow Clubs USA"(sparrowclubs.org) for kids in medical crisis listing under "Cameron Merrill's Legacy program" to help out with his Fight Big Bags is an option too. Also, "Candlelighters for kids with Cancer" (4kidswithcancer.org) also has a "Cameron Merrill Legacy Program" to do a version of the Fight Big Bags too. Both of these great charities have a tax-id number so the donations are tax deductible!! Thank you so much for all of your love, prayers & support. It is a tough road but I/we seriously couldn't have gotten this far without all of your love & positive juju. Thank you just doesn't seem to cover it. Big hugs to you!

Monday, November 11, 2013

Missing him




I am missing him so much...I found this CD of pictures when I was doing some cleaning and had to show you how seriously cute he is. I miss him so much, it just doesn't seem real he is gone sometimes. I miss that smile and those hugs more than words can say. At least when I look at these pictures that it reminds me that he knew he was so loved & we did the best we could to make sure he had a good childhood. He has the exact personality you see in these pictures. Pure love.

Tuesday, October 22, 2013

Oops! I forgot to post this in September!

The September trip to Doernbecher's Children's Hospital PICU(Pediatric Intensive Care Unit) 2013

October

It's been hard to get back on here lately to give you an update. Things are pretty crazy around here now. The twins are in Kindergarten now and all of the juggling that goes with that. I would say that's the reason but really, the roller coaster is picking up speed again. The month of October was when all of the hard stuff started & the beginning of the end. It is a whole new kind of hard. There is so much weird stuff/feelings that goes along with all of this, it's amazing. I could go on & on. The good news is, the weird is normal, if that makes any sense. Right up until October, the easier days were getting to be more in a row than the hard ones. Last year, we spent the total holiday season there at Doernbecher's. This year, the truth is, I want to hide from it all, but the twins & Dad need me there and engaged. I may still do some hiding. My guess is February things will start to feel more settled. I finally found a mental "tool" that helped. The twins actually told it to me after one of the grief camps we went to this summer, the Benton Hospice(He wasn't on hospice, but they have a day to help kids with grief). They said, "We are all connected by a thin invisible silvery, sparkly thread. Everyone we love, everyone we care about, we are all connected together by a special thread. So, even in heaven Cammy is still connected to us by that thread." Out of the mouths of the kids, that helped my huge overwhelming panicky feeling of instinct of "Where is my baby, is he ok, where is he?" Feeling that connection to him, the special thread, that he is not just roaming somewhere in heaven. See, this the weird stuff I was talking about. Everyone with degrees & experience agrees I am normal, it just feels so weird to think this way. Another "tool" I learned was that there is so much deep, deep pain...it's kind of like if you stare directly at the sun too long, you would probably go blind. If you can make yourself (mentally) take peeks at the pain or "sips" it can be a little more bearable. If I think about how much of him and his lifetime I have lost out on, he's lost out on, I could go bonkers. So, "sipping" the pain & redirecting seems to help. It sounds so weird but it works. I am taking a break on doing a ton of his "Fight Big Bag Legacy" stuff right now, just until we get past January 17th. Then I will be back at it in full force. Some days are just so...ugh. The twins are doing really well, Cressey only had one hard "Cammy" day at school. Keylin is quiet sometimes and just watches the cute little boys and always points out the ones that looked like Cameron. Cressey has pretty much stopped asking if we could go to the baby store to get another baby boy & name it Cameron. Talk of Cameron around our house is never far from the surface. Whenever we do something as a "family" they always talk about how he is doing it(whatever the activity is) with us too, up in heaven bigger & better than we are here on Earth. Dad is doing good, nothing about this is easy, just keeping busy. I think we are all making some progress, it's just slow. Our friends & family did soooooo great in September with all of his Legacy events! Dad is getting a shaving team together for December, St. Baldricks...they fund research to cure childhood cancer. So many great things done in his honor, to make the world a little better, or "Big Better" as Cameron would say. We really helped a lot of people in the PICU(Pediatric Intensive Care Unit)during their toughest times, thanks to you. The "Fight Big Bags" are awesome. 128 pints of blood back into the system from the blood drives!! Each donation save 3 lives! Thank you for helping him to leave a mark on this world!!!! Wow, I wrote another book on here again, oops information overload Thank you for your love, prayers & support! Big giant hugs to you!!

Tuesday, September 17, 2013

9 months today

It just hit me...9 months today. I miss him so much, sometimes it feels like it was all just a bad dream & I will wake up and he will be here. Wishful thinking I guess. I just miss him sooooo much. Life with out him just is too quiet. This picture was taken last year when we went to tour the fired department here in Corvallis. He loved the fire trucks. The were not just oh-boy, but "Big-oh boy" Cammmy said. He would have just started pre-school. He would be a big kid now. We talk about him all the time. The twins talk about him nearly every day about what he would be doing if he was still on earth & what he must probably being doing in heaven, at that moment. The twins tell people "I have a baby brother, he is 3, he lives in heaven" just so matter of factly. They help us remember the cute little things he would say or do. It is all getting to be a way of life now. I still have a hard time seeing little boys that resemble what he looks like or who he might have grown into. I think that will stick with me. I just miss him. Please don't ever be afraid or feel awkward talking about him to us, we think about him all of the time. Thank you to everyone who have helped his legacy keep going. Thank you for your love prayers & support

Thursday, September 5, 2013

He would be 3 yesterday

Ok, so I want to build on my friends idea about Cameron and involve you...people always ask what they can do to help and I never know what to tell them...ok, so I want to build on who Cameron is, who he was and who he didn't get the chance to be.  He would always say to the twins when they were crying "Are you happy now? Are you big better or little better? Are you happy now?" so in honor of his birthday of his life, who he was and who he would be, I want to ask you to do one good thing for someone else that you wouldn't normally do.  When you do, think of Cameron & do it for all the good things he never got a chance to do. My goal is for him to have a lifetime of good things to add to the world, a full lifetime. This is what you can do to help  <3 You can do it (little things or big things) and comment here to give others ideas or you can keep it to yourself. I just want him to have a lifetime in some way.  This may sound like a super weird request....but it makes perfect sense to me.  <3 Thank you to everyone who has already done this.  <3 Big hugs to all of you <3